Quality of Life Following Early Breast Cancer for Women in Regional Australia, and the Role of Experiential Avoidance
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Quality of Life Following Early Breast Cancer for Women in Regional Australia, and the Role of Experiential Avoidance

 

 

This survey is for women living outside of capital cities who have completed their treatment (chemotherapy, surgery, and/or radiation) for early breast cancer (Stage I – III).

 

Human Research Ethics Approval Number:  H21REA005

 

Research Team Contact Details

Principal Investigator Details

May Chi

Email:  may@usq.edu.au

Mobile: +61 400 533 952

 

Supervisor Details

Associate Professor Gavin Beccaria

Email:  Gavin.Beccaria@usq.edu.au

Telephone: +61 7 4631 2382

 

Description

This survey is for women living outside of capital cities who have completed their treatment (chemotherapy, surgery, and/or radiation) for early breast cancer (Stage I – III).

I am requesting your participation to help me learn more about your experience.

The purpose of this project is to understand the wellbeing of women who have had early breast cancer.  I am looking at how different things may affect women’s quality of life after their treatment.  Past studies done by other researchers have suggested that there are many factors associated with women’s wellbeing after treatment, including exercise, smoking, age at diagnosis, type of cancer treatment, socio-economic status, and many others.  Past studies have also suggested that women sometimes have concerns about cancer recurrence.

Most of these studies are conducted with women living in major cities.  I am looking to know more about how these sorts of things affect women living in regional and remote Australia. 

I hope we can get snapshot of regional women’s quality of life following breast cancer. 

I understand that some treatments for breast cancer can last a long time, such as Hormone Replacement Therapy.  It is ok if you are still on these therapies, as long as you have completed chemotherapy, surgery, and/or radiation.

This project is being undertaken as part of my Master of Psychology / PhD (Clinical Psychology) degree.

 

Participation

Your participation will involve filling out an online survey.  This survey may take between 10 – 20 minutes. 

Some questions may ask you about your thoughts about cancer, such as, “How often do you worry about the possibility that your breast cancer could recur?”.

Your participation in this project is entirely voluntary. If you do not wish to take part, you are not obliged to. You will be unable to withdraw data collected about yourself after you have participated in this questionnaire because we will have no way of identifying you from your response.

Your decision whether you take part, do not take part, or to take part will in no way impact your current or future relationship with the University of Southern Queensland.

For every completed questionnaire, up to 2000 questionnaires, $1 will be donated to the Breast Cancer Network Australia (https://www.bcna.org.au/), which is an organization that provides free information and support to Australians affected by breast cancer.

 

Expected Benefits

It is expected that this project may not directly benefit you. However, if we can understand what is going on for regional women after their treatment, then we may better target the support that may be required after primary medical intervention.

 

Risks

In participating in the questionnaire there are no anticipated risks beyond normal day-to-day living.  However, if you experience a higher discomfort or inconvenience than you had expected to when answering the questions, please make use of free, confidential telephone counselling through Lifeline.  Phone: 13 11 14.

You can also use a Breast Cancer specific help line through Breast Cancer Network Australia. Phone: 1800 500 258.

You can also contact me with your concerns, and I would be glad to assist with providing referral support.  My direct phone number is 0400 533 952. 

 

Privacy and Confidentiality

All comments and responses will be treated confidentially unless required by law.

The names of individual persons are not required in any of the responses.  No one will know if you personally completed the survey or not.

The data collected is stored in non-identifiable form and will be made available for future research purposes for projects about women, health, regional/ rural experience, and psychology. The results will be communicated to the community in a number of formats that may include written articles and oral presentations.

Any data collected as a part of this project will be stored securely as per University of Southern Queensland’s Research Data Management policy.

 

Consent to Participate

Clicking on the ‘Submit’ button at the conclusion of the questionnaire is accepted as an indication of your consent to participate in this project. 

 

Questions or Further Information about the Project

Please refer to the Research Team Contact Details at the top of the form to have any questions answered or to request further information about this project.

 

Contact for Results

If you, or any interested parties, would like me to email you my thoughts and results after the preliminary data analysis, please contact me via phone (0400 533 952) or email (may@usq.edu.au).  I will get your email address, which I will not link to any data, and use only for the purpose of communicating the results to you.

 

Concerns or Complaints Regarding the Conduct of the Project

If you have any concerns or complaints about the ethical conduct of the project, you may contact the University of Southern Queensland Manager of Research Integrity and Ethics on +61 7 4631 1839 or email researchintegrity@usq.edu.au. The Manager of Research Integrity and Ethics is not connected with the research project and can facilitate a resolution to your concern in an unbiased manner.

Thank you for taking the time to help with this research project. Please keep this sheet for your information.  To print a copy, press the keys CTRL+P and follow your computer’s prompts.

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